Scooter Sagas : Coping with Ataxia

Scooter Sagas : Coping with Ataxia by Tammy Lanning Schuman (2013, Paperback)

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In normal health, I refuse medications and supplements.

Scooter Sagas: Coping with Ataxia by Tammy Lanning Schuman (Paperback / softback, 2013)

Boy have I succumbed to that rap! Everyone who gets sick has to go through it, fully. I am pretty good at taking care of my sick body, even before cancer. I have a knack for it. Not that it gives me any real advantages because even if I follow a pretty strict health protocol, I still have to go through any illness I do get, fully.

Friday I was more vertical. Today, Saturday, I feel in good humor and know the worst is behind me. The neuropathy is getting better. I was malnourished and dehydrated — perfect conditions for an illness to go from zero to sixty in no time flat. I got up to over degree temp, now down to… what? The sinus infection was really silent, but at its worst I had a headache of shooting pains which refused to submit to all pain relievers I could tolerate taking, for 3 days.

No sleep and debilitating pain with no control. Kind of like that? Can I amputate my head? Not really, but spots are appearing on my back, neck and arm, all on the left side. And the welts are swollen and massively sore because I sit on them!! Can I get a butt transplant?! Matt felt so helpless, as did I, but I was just too miserable to care about anything! I guess I had to celebrate this occasion with a long rant.

Since yesterday I am feeling so much better. So I will close with a little entertainment: By all accounts family, friends, doctors I am doing really well. Starting to think about what I will need after surgery. The surgery is scheduled for Jan 8. No anxiety yet that should come a day or two prior. Wednesday, the 7th I sit down with the surgeon and finalize things. It looks the same as the first day I removed the dressings to take a peek.

The only difference I could see was a greyish creamy matter at one end of the opening. Any changes, to me, are to be regarded with suspicion and concern for more potential complications. She wrote the contact name and number down on my discharge instructions, and away we went.

Then, after a few days of this seemingly ridiculous routine of Matt performing his interpretation of what the doctor instructed him to do each morning and evening, we decided we needed to see this Wound Care specialist. The nurse, Sue Wilson, was like a refreshing breeze. She was the Florence Nightingale of Good Sam.

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There were a number of patients waiting to see her in the lobby. Florence, I mean Sue, proceeded to lay me back on the exam table and examine the unbandaged wound. Then she warned me she would clean and poke around to inspect it, that it may hurt. That was our first ah-ha moment. Then she cleaned inside the wound, and to our surprise, a 5-inch long Q-Tip slid easily into a channel under the skin about 2 inches Ayayay!

An infection leaves a trail, like snails do! Or at least like a train track. She noted the measurements; how deep the tissue was, how long the incision, how far the channel went….

She then introduced a product that is seaweed kelp? It looks like angel hair in a bag. With this, instead of packing with gauze, it helps the tissue stay nourished and it absorbs wound drainage. Then she loaded brown paper bag of water-proof bandages that I can wear while showering, some Q-Tips, adhesive protection spray to make it easier to remove the adhesive bandages from my skin for me to take.

Now, naturally, I think, Matt and I have been gravely concerned about the cleanliness and preparation of our at-home exam table the bed and countertop, hands, etc, to avoid any possibility of introducing a whole new infection to the area. When you cut your finger, you use alcohol, hydrogen peroxide, cotton balls, Neosporin, band-aids for protection, you name it, on the wound to keep it from getting infected. And the infection gets worse and worse until you do it right for long enough that it heals up. Soap and water will not hurt anything, it will be good for the cut to be irrigated by the water!!?!

Other than that, I feel more energy. Kombucha, green tea, lots of fresh turmeric root, ginger, garlic, water… kind of what I usually do, just more of it. I introduced wine last night for the first time in over a week, and I maintain a strict regimen of ice cream after dinner. In the next few months we will be eating from home-grown bounty!

Matt delivered me to the hospital and stayed with me the entire time that they would allow him.

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He was such a good sport, yet I felt badly that he would have to take an entire day away from his obligations for this little medical hic-up, and worry about me for hours on top of it all. Well, what could be done?

The surgeon was running an hour and a half behind, so it was quite a long wait, but no worry, I could catch up on all the wonky politician statements in the voters pamphlet, ha! Then the anesthesiologist appeared. I just wanted to get home. That kept me at the hospital until I made sure they would mind the anti-nausea medication this time. Ok, it was a deal.

Tseng came in and reiterated the planned procedure. He laughed assured us he would. Next think I know, I was in the recovery room funny, the passing of time. All went well, and I passed this test. No nausea to speak of. I ate some ice chips, then sipped some water, then added saltines on top of that. I was out of it, but felt good. About an hour and I took two Oxycodone for some creeping soreness, and got dressed, and we left!

It was about 4: The doctor had found some extra suture material under the smaller of the two pimples on my abdomen, which would have made it impossible to fight off an infection, then removed some of the mesh from under the larger pimple. He found no tracks of infection leading to other areas under the skin, so was confident he excised everything he needed to in order to vanquish the infection.

The nurse recommended instead that I see a healing specialist who will have some alternative methods of healing the wound. I guess packing went out of fashion? Not too fond of it, myself. I think this is good? My body is expelling the infection? I am not to change the dressing for 24 hours, so I packed on a hand towel and pulled up a fitted cotton skirt to aid holding it in place. I looked as white trash as possible with my hot pink tank top, short, fitted skirt and bulging belly bandages.

It was such a beautiful, sunny day, a good day for recovery on the couch! And Matt stopped at the grocery store to buy some salmon and halibut to barbecue. It was peaceful at home. I snoozed for a while. We watched The Social Network, which we enjoyed. Even though we were both tired, we had a lovely date! Yeh reminded me told me to eat a healthy diet and stay active.

The American diet usually means heavy dinners, but this is not always best. Try to spread dinner out to smaller portions over a longer period. Then, my mother-in-law heard on the news that everyone in America is pre-diabetic I assume, besides those who are diabetic already. And why would I not believe this stat? Even some of the healthiest people I know still include candy in daily diet, sugar drinks, alcohol, refined sugar and carbs.

Das klassische Griechenland (Bd.16) : 480-330 v. Chr.

Kids trick-or-treat, have birthday cake, pop, candy with terrible ingredients and are rewarded with doughnuts larger than their heads… no wonder we grow up to be diabetics. Maybe I can not panic about it. Less quantity of food per serving with more small snacks. At least to start out, and then move into a more refined diet plan. So far, after a week, I feel better! Less gas, less diarrhea and discomfort at night.

I still eat a little too much quantity at dinner I am quite the cook , yet compared to the previous extravagant meal and dessert routine and glass es of wine with accompanying discomfort, I do feel much improved! Of course, few will argue that food is a culture. It is my culture. Anything in moderation, and so that is the key with this new diet plan: Matt and I met Dr. Susan Yeh last year when I made an urgent trip to the doctor due to one of many bladder infections I had been getting since the rectal cancer surgery. My nurse practitioner, Cathi, was not available then, but Dr.

I was in amazing discomfort, so we could not afford to be choosy. We learned that Dr. I saw Cathi for my physical once again after that, and my feeling was, as a cancer survivor, that I am a vastly more complicated patient this year than last, particularly my colon and rectum. Time for a change. I would miss Cathi, but I needed Susan. Why are my stools runny at night? Why so much gas?

Since she understood the procedures used during my surgery and treatments, she could ascertain what was going on in there. Then s he spent extra time with me to catch up on everything she should know of my history. Yet my expectations of my own body are high. Higher than high blood sugar! Especially after recovering for the last year from a major illness!!

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For different people some things wear down earlier and some later. Eyesight, hearing, memory, joints, liver, hair gets grey… Things wear out. It depends on family genetics, personal habits, environmental factors, etc. Then, in a matter-of-fact tone, her advice is to keep eating a healthy diet, lots of fiber, but not too much to cause gas, and stay active. I could not stop thinking of it after leaving the appointment. Having Ataxia for a while, I had become accustomed to dealing with 'body malfunctions'. Not that I always take things in stride, but I usually accept a certain level of inevitability.

When Earl began having pain in his hip, it was a totally new experience to him. As the progressive discomfort started impinging on a lifelong active lifestyle, he was open to a corrective intervention. X—rays predictably confirmed that one hip needed replacement surgery. Anticipated, but somewhat complicated by his caregiving responsibilities.

He was going to be temporarily out of commission and not available to me. Of course, it is all about me. In and out 14 hours. Fortunately, he had surgery and went home later that day. Jason was the designated caregiver. We both knew that one person with limited mobility in the house at a time was enough. So, off I went to Arizona. All the modifications that we made to accommodate my Ataxia also made the house ideal for post operative rehabilitation.

Being on one level, hardwood floors, grab bars by the toilet, bedside rail assist made it as good as most hospitals. The week before, the village had shoved the bed toward my side, transferred the bedside rail assist, and brought our recumbent cycle downstairs. Having me out of the house was just an extra bonus. I came home five days after surgery—just in time for rehabilitation. We had stayed in daily FaceTime contact, but it was good to get home. I had missed his 'aroundness'. Life was good and he surprised everyone by not over—doing he's prone to that.

Earl and new hip Earl learned that there were many separate steps, prior thought and planning to bathing and dressing. He hadn't ever needed to think about that. I was tempted wicked witch nature , but managed not to say, "Really? That never occurred to me.

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