Jumpstart The Resource Guide For Parents With Developmentally Delayed Children


You can also learn about creating a healthy sleep environment for your child and discover useful resources for learning everything you need to know about why and how we sleep — and how to make sleep better for children. Skip to Main Content. National Resources Disclaimer The inclusion of any link on this website does not imply endorsement.

Able National Resource Center. These tax-advantaged savings accounts can be used to cover qualified disability expenses such as, but not limited to, education, housing and transportation. Online-site with a wide range of resources and articles on living with a child with special needs. ACL brings together the efforts and achievements of the Administration on Aging, the Administration on Intellectual and Developmental Disabilities, and the HHS Office on Disability to serve as the Federal agency responsible for increasing access to community supports, while focusing attention and resources on the unique needs of people with disabilities across the lifespan.

Every day individuals advocate on behalf of themselves or others to communicate needs, share experiences, and take steps to get what they want and need.

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On FamilyConnect you'll find videos, personal stories, events, news, and an online community that can offer tips and support from other parents of children who are blind or visually impaired. The Americans with Disabilities Act of ADA prohibits discrimination and ensures equal opportunity for persons with disabilities in employment, State and local government services, public accommodations, commercial facilities, and transportation.

Respite is planned or emergency care provided to a child or adult with special needs in order to provide temporary relief to family caregivers who are caring for that child or adult. The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs in the United States; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums. Assistive devices and services can be of great value in providing infants and young children with disabilities opportunities to learn and interact with their environment in ways that might not otherwise be possible.

Autism Navigator is a unique collection of online courses, with interactive web and video footage showing effective evidence-based practices, tools and resources to support families and integrate the most current research in autism to bridge the gap between science and community practice.

The National Autism Resource and Information Center, nation's source for resources and information on community-based solutions for individuals with autism, other developmental disabilities, and their families. It is a dynamic and interactive, highly visible and effective central point of quality resources and information for individuals with Autism Spectrum Disorders ASD and other developmental disabilities, their families, and other targeted key stakeholders. Beach Center on Disability. The Beach Center on Disability has information available on cutting edge research and resources for families.

Promotes early developmental and behavioral screening. With early and regular screening, you can make sure that your child gets the services and support they need to thrive. A non-profit parent organization providing a comprehensive system of information and referral for parents of children from birth through transition to adult life.

A resource from the American Academy of Pediatrics that provides information for parents, early education and child care professionals and health care professionals about child development.

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They also provide a number of informative articles regarding Hiring a Special Needs Caregiver, Respite Care, and more. Center for Inclusive Child Care. The Center for Inclusive Child Care's mission is to create, promote and support pathways to successful inclusive care for all children.

The program is a comprehensive resource network for inclusive early childhood, school age programs, and providers. Centers for Medicare and Medicaid Services. This website has fact sheets on intellectual disabilities. It also has links to resources related to infants and toddlers and another for school age children. It offers tips for parents and educators. It also has links to other organizations that support individuals with intellectual disabilities.

Center on Technology and Disability.

115 Best Resources for Parents of Children with Special Needs

The Center on Technology and Disability provides a wealth of free resources. Cerebral Palsy Group is a national organization that was created so that it may serve the individuals and families who have been diagnosed with cerebral palsy. We are here to provide information and support so that we may help provide resources and education to those affected by CP. We are equipped to help families get in contact with local organizations that can provide emotional support, as well as a community of others who understand what they are going through.

My Child at CerebralPalsy. We provide information, resources, support and unlimited inspiration to all those touched by cerebral palsy, and other neurological conditions. This website has a special focus on preemies and adoptees with disabilities or special health care needs. Dads Appreciating Down Syndrome. This is for families of young children who want to know more about early intervention and preschool special education data. The DaSy Center provides resources to help families understand why data are important.

We want to help families ask good questions about data. We want to help families partner with program staff to set directions based on data. The site connects people of all ages with disabilities, their families or caregivers to helpful resources on topics such as how to apply for disability benefits or get health care. Helps you find organizations in your community to help you get the support you need. Early Childhood Technical Assistance Center. For Families — We have designed this ECTA Center page to help families understand their rights under the Individuals with Disabilities Education Act IDEA , connect with other families, and find high-quality resources related to caring for infants, toddlers and young children with disabilities.

Early Intervention Family Alliance. FREE enrollment to all families who have a child in early intervention! Provides practical advice and emotional support to families of children and adults with disabilities and special health care needs, as well as the physicians, allied health care and educational professionals who are involved in their care and development.

They provide a one-to-one matching service where an experience support parent will partner with new parents to help them emotionally and assist them in finding information and resources. The Child Mind Institute is an independent nonprofit providing support for children with mental health and learning disorders and their families. Their website provides information on common challenges faced by these families.

Their website provides comprehensive research and resources for parents. Friendship Circle is a non-profit organization working to provide every individual with special needs the support, friendship, and inclusion that they deserve. Their blog is a great up-to-date resource for parents. Wrights Law provides extensive information about special education law, education law, and advocacy for children with disabilities. You can search by topic to find articles, book suggestions, and more, including actual cases.

The NCWD-Youth assist with and provides the latest information on transitioning youth with disabilities into the workforce. NCHPAD is the premier resource for information on physical activity, health promotion, and disability, serving persons with physical, sensory and cognitive disability across the lifespan. Their website features a variety of resources and services which can benefit all ages and populations. Our-Kids brings together parents, caregivers, and those that work with children with special needs to create a special community of support and information sharing.

We do this by providing information, education, community, support, and advocacy, all in an atmosphere of validation and respect. The Beach Center on Disability. The Beach Center on Disability is a multidisciplinary research and training center run by the University of Kansas. They are committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them.

They share the findings from their research and provide great resources for parents. Smart Kids with Learning Disabilities. AIM is designed to provide high-quality information and professional development for anyone who supports, instructs, works with, or lives with someone with autism, through the use of internet modules an individual can work through online. Different Roads to Learning was founded by mom and entrepreneur, Julie Azuma.

When her daughter was diagnosed with autism, Julie became aware of just how hard it was to find the right teaching tools for her daughter. Determined to fill this void, Julie hoped to help other struggling families by hand picking the best autism intervention products available and offering them in one place.

On this site you will find products and also expert articles on all kinds of parenting topics. Our goal at the EasyStand Blog is to communicate to you what we stand for, whether it is about standing, disability, or just topics that we care about. We want to encourage interaction with our many circles of contacts — suppliers, clinicians, consumers, and their families. This website was created by parents of a child with special needs to help other parents of children with special needs, with articles on topics that they have found to be helpful over the past 20 years.

For the first time ever, 15 nonprofit organizations have joined forces to support parents of the one in five children with learning and attention issues throughout their journey. With state-of-the-art technology, personalized resources, free daily access to experts, a secure online community, practical tips and more, Understood aims to be the support parents need to help children unlock their strengths and reach their full potential.

Their online resources provide a great wealth of information for parents. Raising Special Kids is a non-profit organization that provides support and information for parents of children, from birth to age 26, with a full range of disabilities and special health care needs. SFCD is a parent-run nonprofit organization that supports families of children with disabilities or special health care need as they face challenges.

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Buy Jumpstart - The Resource Guide for Parents with Developmentally Delayed Children by Kelley King-Spears, Valerie King, Denosja King (ISBN. Jumpstart The Resource Guide For Parents With Developmentally Delayed Children by Kelley King-Spears.

Their website provides families of children with disabilities with the information, resources and support they need to make informed choices for their children. NAPCSE is a national membership organization dedicated to rendering all possible support and assistance to parents whose children receive special education services, both in and outside of school. NAPCSE was founded for parents with children with special needs to promote a sense of community and provide a national forum for their ideas. The Coffee Klatch is a morning radio show and a virtual cup of coffee for parents of children with special needs to support each other and exchange information.

Answers4Families seek to provide support and reliable information for families of children with special needs. The Autism Support Network is designed as a place by those living with ASD for those with ASD and those seeking social connection, peer guidance and a feeling of community with those that understand. A licensed and certified speech-language pathologist created this website to provide information to parents, teachers, etc. BrainLine is a national multimedia project offering information and resources about preventing, treating, and living with TBI.

Developmental Delay Resources

Special Needs Resource Project. Special Needs Resource Project SNRP provides a basic guide for parents of children with chronic health issues, disabilities and special needs. This site is designed to help you get a jump-start in your search for helpful information and resources. Abled Body is a news and media website for families of and individuals with disabilities. They focus on assistive and emerging technologies, but you can also find lots of articles about lifestyle, design, and work life.

Support for Special Needs. Support for Special Needs is an online community for advocates and caregivers to share information and support one another.

Special Needs Jungle provides easy to understand resources for parents and caregivers of children with special needs. They aim to deliver the tools needed to empower parents and caregivers to self-advocate so their children can live the best possible life. Kid Companions is run by a mother and grandmother of special needs children who want special kids to be themselves and thrive.

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In addition to providing products to help sensory challenged children, their blog is run by a former teacher and grandmother of special needs children and full of great information for parents. This website offers access to teleseminars, blog posts and other material. Not Alone is run by parents of children with special needs who rely on their faith for strength in their journey and pass along the comfort it has brought them to other parents looking for support.

A former special educator provides resources to guide parents and guardians through the special education process to make sure they are making the right decision for their child. Bloom was created by Holland Bloorview Kids Rehabilitation Hospital to combine the knowledge of professionals and parents of children with disabilities. The Caregiver Space is a special online support community where caregivers can vent, ask questions, and be there for one another. Reading Rockets brings proven research and helpful information to parents and instructors to help children become confident readers.

Their website contains lots of great information about reading strategies for children with special needs. Special Needs Parents Association. The Special Needs Parents Association was established to represent the views of all parents of persons with special needs and disabilities, regardless of their diagnosis or age. Hopeful Parents is a grassroots organization where parents of children with special needs can connect and share their journeys. MyChild is a comprehensive website designed as a one-stop destination for information, tips, resources, encouragement and inspiration to individuals touched by Cerebral Palsy.

Raising a Sensory Smart Child. This website accompanies the books, Raising a Sensory Smart Child: This site provides help with over fact sheets of autism-related information, with an emphasis on practical strategies, for families who cannot afford the more expensive interventions, or may be geographically isolated and cannot access autism support services. Learning Disabilities Association of America. PACER Center enhances the quality of life and expands opportunities for children, youth, and young adults with all disabilities and their families so each person can reach his or her highest potential.

PACER operates on the principles of parents helping parents, supporting families, promoting a safe environment for all children, and working in collaboration with others. Project is a national, community-based organization of volunteers dedicated to promoting awareness and facilitating support of parents caring for their children with special health care needs, thereby enhancing the Quality-of-Life for these special families. Federation for Children with Special Needs. The Federation for Children with Special Needs provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities.

They provide families resources and support to make informed decisions, advocate for improved public and private policies, build partnerships among families and professionals, and serve as a trusted resource on health care. Council for Exceptional Children. CEC provides a lot of quality information for parents and educators on their website. The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

Their website provides a wealth of information for parents of children with down syndrome.

Early Recognition Of Child Development Problems / Educational Video

Closing the Gap was started by the parents of a child with a disability. Today, Closing the Gap still provides the latest information and news in the assistive technology industry. Their website provides everything a parent needs to know about getting involved in disabled sports. The Life Unexpected is the ultimate survival guide for parents and educators who are navigating the muddy waters of raising special needs children. Marianne Russo, the creator of The Coffee Klatch Special Needs Talk Radio Network, takes readers from that first step of accepting the reality of your new life to the true meaning of advocacy, empowerment and hope.

The mission of PCWSN is to empower parents of children with special needs by providing communication, information, general knowledge, understanding, encouragement, support and guides to services that are available. This website was created by Jim Lubin, who is a C2 quadriplegic, and provides lots of useful information from product recommendations to book reviews. Focus is on assisting fathers as they become more competent and compassionate caregivers for their children with special needs.

The Goals of Kids Together, Inc. We support the belief that children with disabilities, like all children, have the need to be welcomed, cherished and embraced in our communities. AHA serves individuals on the autism spectrum, their families, and the professionals who work with them, providing crucial resources and support as they face challenges, build on their strengths and fulfill their potential.

AHA helps families and individuals become more informed self-advocates. Our programs encourage awareness and acceptance. Sensory Processing Disorder Now. This website offers a wealth of information at the SPD Foundation section of the website, as well as an online learning center for parents at the SPD University section of the website.